Through the CCS Friends network, I’ve heard news of clinical trials at Dana-Farber in Boston that have shown some interesting results. I have an appointment with Dr. Andrew Wagner on Wednesday to learn more about potential options. I get excited to hear about anything that might save my life, but try not to get overly optimistic because I know there is no miracle drug at this time. I don’t want to build myself up for a unbearable disappointment. I have had to learn to play a lot of mental games with myself to cope these past several months.
It was another cold morning in Orlando. According to the thermometer in the car, it was 32 degrees. It had to be pretty accurate because there was ice hanging from the bottom of the orange trees. We stopped by Aaron’s hotel to have breakfast and meet up with him for a ride to the airport. It’s always great to see Aaron around his hotel in his element. He’s perfect for his position as General Manager of a Marriott Residence Inn; great with people and an extremely hard worker. He’s Marriott’s best asset!
We flew into Boston Airport and met up with Ryan, who was joining us for the appointment in the morning; he’s my medical adviser! I do pretty much whatever he recommends. This is the most extreme house call he’ll probably ever make. Out of an interest in a little extra adventure, we took a ferry to Hull, MA where we met George and Christine. It was freezing as we crossed the Harbor, but the view was worth it. At George and Christine’s they had prepared the most excellent Lobster dinner; what could be better in Massachusetts! Thank you George and Christine for everything you have done!!!