My appointment at Dana-Farber yesterday was another routine visit: blood draws, EKGs, and an appointment with Dr Wagner, who has been an excellent doctor. He had been been reminding us of someone for a while, and we finally figured it out and asked him about it. Before I could say Gary Sinise, he said Lieutenant Dan, right? Am I crazy, or do you see the resemblance?
I have now completed one cycle, four weeks, on Crizotonib. We won’t know for sure whether or not the drug is working until the end of the second cycle when they do a CT scan and compare it to the original scan. Dr Wagner explained that if there are any new tumors, or if the existing tumors have grown more than 20%, then they assume the drug is not effective and take me off the trial; anything less and they will keep me on the trial. From my own subjective measurement, I am fairly confident that the tumors have already grown at least 20%. This makes things difficult; do I continue paying for expensive and timely trips to Boston when I’m fairly sure the drug isn’t working for me?
In the event that Crizotonib is ineffective, Dr Wagner mentioned a few other potential drugs that I could consider next. However, they sounded more toxic with lower chances of success. As I sat in the hotel last night, I started to feel some depression as the reality set in of growing tumors and no success path. I feel this way each time we head to Boston, and always look forward to getting back on the road, my best medicine. Unfortunately this was delayed once again due to a northeastern snowstorm.